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Please note: During the COVID pandemic, regular services and events provided by organizations may be changed or even shut down. On the other hand, many agencies are offering virtual services, making it easier to access services than before. Please check the agency's webpage, or call them directly (as websites may be out of date). 

Cornelia de Lange Syndrome Foundation
The Cornelia de Lange Syndrome Foundation is an American family support organization which ensures early and accurate diagnosis of CDLS; promote research into the causes and manifestations of the syndrome; and help people with a diagnosis make informed decisions throughout their lifetime.
302 West Main Street #100
Avon, ON, 06001 Map
1-800-753-2357 x18002238355
Ages served: All ages
Languages served: English
Fees: None
Area Served: World
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This resource is listed under these topics

Self-help, Mutual Aid and Support Groups
Last modified Oct 8, 2008 6:46pm
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