Please note: During the COVID pandemic, regular services and events provided by organizations may be changed or even shut down. On the other hand, many agencies are offering virtual services, making it easier to access services than before. Please check the agency's webpage, or call them directly (as websites may be out of date). |
Cornelia de Lange Syndrome Foundation |
The Cornelia de Lange Syndrome Foundation is an American family support organization which ensures early and accurate diagnosis of CDLS; promote research into the causes and manifestations of the syndrome; and help people with a diagnosis make informed decisions throughout their lifetime.
Ages served: All ages
Languages served: English
Fees: None
Area Served: World This resource is listed under these topics
Last modified Oct 8, 2008 6:46pm